Castleman’s Blog

Dear Guests, The redesign and format of the Castlemans Disease website will be an ongoing effort to create a format for world-class access of information and dialogue on this rare disorder. My commitment to you, the patients, families, friends, and colleagues of this disease is to provide up-to-date and verified medical interpretation, recommendations, and referrals to treatment facilities and associated information on this rare disorder. In order to leave a message, from the main page choose a section of the dialogue that is appropriate to your question or comment. Click the “more” button which will direct you to the “LEAVE A COMMENT” screen. There is a red security code that must be entered in order validate the user and ultimately post a message. Once all your required fields have been completed, you may spell check the message before sending. Once sent, it is delivered to my CD email box for review and sanitation. This prevents spam, and other selling patrons that try to abuse the site. Submit the comment and once a day I will review the in box and post messages to the appropriate blog. In the event an immediate response is required, you may send an email directly to my email address for a faster answer. Enjoy the site and stay tuned for additional updates. Thank you. Jim Johnston, Executive Director International Castlemans Disease Organization Santa Fe, NM USA