Castleman's Blog http://castlemans.org/blog The premier place on the web to discuss Castleman's disease Sun, 02 Aug 2009 18:39:58 +0000 http://wordpress.org/?v=2.9 en hourly 1 Success Stories http://castlemans.org/blog/?p=28 http://castlemans.org/blog/?p=28#comments Mon, 13 Nov 2006 02:51:00 +0000 Jim http://castlemans.org/blog/?p=28 If you have a success story regarding your treatment, facility, drug therapy or remission, please share it here.

Regards,

Jim Johnston,
CD Executive Director

]]> http://castlemans.org/blog/?feed=rss2&p=28 59 Clinical Trials for Castlemans Disease and associated disorders http://castlemans.org/blog/?p=13 http://castlemans.org/blog/?p=13#comments Tue, 10 Oct 2006 00:35:00 +0000 Jim http://castlemans.org/blog/?p=13 This Blog is intended to start a dialogue on the various clinical trials that patients are interested in or need additional information on. Please limit this Blog to specifics on associated trials. Thank you.

Regards,
Jim Johnston,
Executive Director,
International Castlemans Disease,
Santa Fe, NM, USA

]]> http://castlemans.org/blog/?feed=rss2&p=13 58 Physician Inquiries http://castlemans.org/blog/?p=14 http://castlemans.org/blog/?p=14#comments Mon, 09 Oct 2006 14:11:00 +0000 Jim http://castlemans.org/blog/?p=14 Please reserve this section for physician inquiries, comments, and communication between physicians. Although this is open for general public viewing, postings will be sanitized and limited to accredited physicians only.

Physicians, please remember that this site respects the rights of the patient. Under HIPPA guidelines, please refrain from using information which could identify a particular patient.

Without your support and interaction, this website would not be successful. On behalf of the website and the Castlemans Disease patients, families, and friends, thank you.

Thank you and enjoy.

Jim Johnston,
Executive Director
International
Castlemans Disease Organization
Santa Fe, NM USA

HTTP://www.castlemans.org

Email: HMConsult@msn.com

]]> http://castlemans.org/blog/?feed=rss2&p=14 57 Treatment Plan Inquiries for Castlemans Disease; Radiation, Surgery, and Drug Intervention http://castlemans.org/blog/?p=15 http://castlemans.org/blog/?p=15#comments Mon, 09 Oct 2006 03:54:00 +0000 Jim http://castlemans.org/blog/?p=15 Please use this Blog for inquiries or comments on Treatment Plans for Castlemans Disease (e.g., Radiation, Surgery, and Drug Intervention).

Thank you and enjoy.

Jim Johnston,
Executive Director
International
Castlemans Disease Organization
Santa Fe, NM USA

HTTP://www.castlemans.org

Email: HMConsult@msn.com

]]> http://castlemans.org/blog/?feed=rss2&p=15 90 First Time Castlemans Disease Patient Inquiries http://castlemans.org/blog/?p=16 http://castlemans.org/blog/?p=16#comments Mon, 09 Oct 2006 03:50:00 +0000 Jim http://castlemans.org/blog/?p=16 Please use this Blog if you are a first time user with inquiries or wish to request information on Castlemans Disease (CD), treatment facilities, physician referrals or general CD inquiries. Data published here is knowingly public domain, however you may register anonymously. Documents will be reviewed for improper language and/or solicitation. Information contained becomes public once posted and approved.

Thank you and enjoy.

Jim Johnston,
Executive Director
International
Castlemans Disease Organization
Santa Fe, NM USA

HTTP://castlemans.org

Email: HMConsult@msn.com

]]> http://castlemans.org/blog/?feed=rss2&p=16 234 General Castlemans Inquiries http://castlemans.org/blog/?p=17 http://castlemans.org/blog/?p=17#comments Mon, 09 Oct 2006 03:47:00 +0000 Jim http://castlemans.org/blog/?p=17 Please use this Blog for general Castlemans Disease and associated disease inquiries. Responses will be answered by the commentator, forwarded to physicians, or comments provided by other patients.

Please be advised that the comments provided by other non-clinical patients, or representatives from organizations that are not recognized by the International Castlemans Disease website do not represent the comments, concerns, or advice of website colleagues.

Thank you and enjoy.

Jim Johnston,
Executive Director
International
Castlemans Disease Organization
Santa Fe, NM USA

]]> http://castlemans.org/blog/?feed=rss2&p=17 226 Welcome to the NEW CD Dialogue http://castlemans.org/blog/?p=18 http://castlemans.org/blog/?p=18#comments Tue, 03 Oct 2006 02:17:00 +0000 Jim http://castlemans.org/blog/?p=18 Dear Guests, The redesign and format of the Castlemans Disease website will be an ongoing effort to create a format for world-class access of information and dialogue on this rare disorder. My commitment to you, the patients, families, friends, and colleagues of this disease is to provide up-to-date and verified medical interpretation, recommendations, and referrals to treatment facilities and associated information on this rare disorder. In order to leave a message, from the main page choose a section of the dialogue that is appropriate to your question or comment. Click the “more” button which will direct you to the “LEAVE A COMMENT” screen. There is a red security code that must be entered in order validate the user and ultimately post a message. Once all your required fields have been completed, you may spell check the message before sending. Once sent, it is delivered to my CD email box for review and sanitation. This prevents spam, and other selling patrons that try to abuse the site. Submit the comment and once a day I will review the in box and post messages to the appropriate blog. In the event an immediate response is required, you may send an email directly to my email address for a faster answer. Enjoy the site and stay tuned for additional updates. Thank you. Jim Johnston, Executive Director International Castlemans Disease Organization Santa Fe, NM USA

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